Team Dravet- Kobe & Phoenix

Only 7 days to go!!!

We are getting excited as it is only 7 days to go until the Walk for Epilepsy will be in full swing. 
Kobe and Phoenix ran into each other at PCH on Tuesday while they were both there for Appointments. They were both having a good giggle until I got the camera out and then they both found their serious faces.
A big thank you from all of us for all the donations we have received so far!!

We are doing it for Kobe & Phoenix

We want to raise money and make a difference for people living with epilepsy. Both of our beautiful boys have Dravet Syndrome and will experience seizures for the rest of their lives.

Dravet Syndrome is a rare form of epilepsy characterised by frequent, prolonged seizures resulting in progressive functional decline. Dravet syndrome also often results in the onset of developmental delay, speech impairment, ataxia, hypotonia, sensory processing disorder, sleep disturbances and other health complications

The more awareness that is raised the more people living with epilepsy feel more a part of the community 

Please help me by giving whatever you can using the 'Give Now' button. The more people that know about the walk, the greater the impact, so please also spread the word by sharing our page with your friends and family. Thank you in advance for your generosity, it means a lot!

Thank you to our Sponsors


Allied Dental Cockburn

We are so proud of you for creating this awareness. You have our full support. ❤️ Your work family!


Shead Family


Mel And Luke


Sue Burbridge

You are my hero Kobe,


Jodie Rawson

For our grandson love grandma and grandad


Siu-ling Mccallum


Simon Davies

All the best Cass and Az. Happy to do anything to help out ❤️


Catherine Thompson


Dana Monteith


Mario & Paula Arevalo

Much love to little Phoenix 💙💙


Grant, Julie, Dylan & Ryan Scoble

Thinking of you all xx


Peta & Caillan ?

Love you Chubs! ✨💕


Faye Bolden




Grandad And Nana Bo

Keep going Cassie you will have all the support you need from your lovely family Aaron, Elleah and of course Phoenix.


Nicolle Wall



Such a beautiful boy!💕


Tony Kennaird

God go with you.


Evelyn Monkhouse


Vicky Watkinson

Good girl


Sara Risbey

Love his beautiful smiles 😍❤️❤️


Ellen Fletcher

Big loves to Phoenix and fam 💜


Natania Ong

All the best Cass, big hugs for Phoenix 💜


Anubhav Verma

Big hug to Phoenix 🤗💜💜


Aileen Villanueva

All the best Cass! 💜💜💜


Ofelia Gardner

Sending you big hugs❤️❤️


Tae Rawson

Kick ass Cass From Tae, Clarissa, Anakin, Scarlett


Jess M


Les & Mary

From Les & Mary Rawson


Sheila Pryce


Chris Davies



All my love and support xx love yous


Terrence Sinclair

Hi Cass Good luck with your walk and we hope they find a cure in the not to distant futute


Pat Higgins





Guy Gaudet

hope that you feel better soon.


Suzanne Hillan

Good luck


Jessica Wilde


Amy Bagby


Lauren Green

All the best Cass!


T Holland




Penny Parker

You got this!!!!!!!!!


Paris Bell

Thank you Jess for helping raise awareness, I see the struggles my granddaughter faces on a daily basis..x