Why am I so involved with the epelepsy foundation?
Monday 8th Sep
I was diagnosed with epilepsy early 2022 when ibwas just 21 years of age, with no known cause or family history. Still to this day it affects me in many ways that people would never think is possible.Â
At 21; I decided that i was ready for a career change, and on the night on 13th of April 2021 I went to bed, excited tonstsrt my new role with a new buisness the following morning. But I did not wake up in my bed, I woke up in the royal Melbourne hospital during peek Covid Pandemic. Confused, alone, angry, frustrated, but also, sore, achy, drowsy, massive head pain, even sleepy. Too many emotions and feelings for one day.
I find my phone, and call my partner of 5 years to figure out whats going on, he sounds hysterical im even talking to me, telling me to lay down how everything's okay, but I know its not. I lay down, and he starts explaining I then fall asleep, back into another sezuire, this was when the hospital put me on antisezuire medication. Sadly, due to the situation, once i was awake,, I checked my self out of hospital and didnt speak to a doctor for months after. Keep in mind I dont remeber doing that. But i was so scared and alone in the hospital due to covid restrictions i had to get out of there.
Days go by and my partners filling me in and it takes me months to learn what happened. My partner then told me after the first sezuire he was told that I was brain dead and wouldn't have much of a life IF I ever woke up. Look at me now!!
Now going back to it i wasnot being allowed to work or even sure if I have job to return to anymore. Time goes on, I end up store manager of the buisness i worked for, a few sezuires here and there over the years which would affect work and driving abilities.
I would love to write a book on my life, and how epelepsi affects it, but there's not even enought words or time for me to write it all. Im happy to be alive, some days i wasnt but here and now, I am happy and I am proud to be a epeleptic person.
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