Saskia Sharp

I’m taking part in Walk for Epilepsy because...

We live with this debilitating condition day in day out. It’s relentless. It’s cruel. It’s exhausting. It’s crippling. It does not discriminate. 

We live with a drug resistant type of epilepsy which develops and increases in intensity and frequency each year. It’s not genetic, and it has no known cause.  It’s currently not treatable, despite years of multiple different medications, keto diet trials and a Vagal Nerve Stimulator (VNS) implant. 

We still experience over 150 myoclonic Absence seizures a day. Every day.  

Imagine that. Imagine how debilitating that would be to your daily life, your memory, your social interactions, your learning, your relationships, your thoughts, your feelings of self worth, your mental health.  It’s tiring just thinking about it. Now imagine living it. Every day, for the rest of your lives. 

On top of this, we live with a real fear. The fear that one day, our body will just give up. It will have reached its physical and mental load of exhaustion. 

This fear became a terrifying near-reality recently. Our young body stopped breathing during a particularly harrowing Tonic Clonic Seizure. A rare event, but now very much a possibility, a risk, our new reality.  The probability has now risen. Things are not improving. 

We want to raise money and make a difference for people living with epilepsy. 

Please help us raise funds for much needed research, treatment and support for families by giving whatever you can using the 'Donate' button, and if you can, join our Team. The more steps, the more funds raised.  Let’s show Dylan, and people like him that you care. 

The more people that know about the walk, the greater the impact, so please spread the word by sharing our page with your friends and family. 

Thank you for sharing our journey, it means a lot that you care. 

To join our Team and get walking yourself: https://www.walkforepilepsy.org.au/register/vic-nsw

Dylan, Saskia, Nick & Ollie. X