My Activity Tracking
154
kms
My target 200 kms
I’m taking part in Walk for Epilepsy around Australia because...
My son Xavier has a form of epilepsy called Dravet Syndrome. He’s sweet, cheeky, affectionate, and just turned 4. Like many other kids his age, Xavier LOVES splashing in water at the beach, playing basketball and running around with his siblings.
When Xavier was 7 months old, we noticed that he’d started doing some strange jerking movements in the bath. With my wife’s health background, she immediately suspected this was seizure activity and we were very frightened. After multiple presentations to our local emergency department, these were eventually confirmed as myoclonic seizures on an EEG at around 8 months. He had up to 100 of these seizures a day, which then progressed to prolonged clonic and hemiclonic, generalised tonic-clonic (twice requiring intubation), atypical absence, focal impaired awareness, and absence seizures.
Soon after, Xavier was diagnosed with Dravet Syndrome. He has a de novo, truncated mutation of the scn1a gene. We were utterly devastated when we received Xavier’s diagnosis. We grieved deeply for the life he wasn’t going to have, and for the life we thought our family would have. It was a tough first few months.
Xavier’s diagnosis of Dravet Syndrome has had a profound effect on our lives. His two older siblings have witnessed very frightening situations during Xavier’s seizures. His diagnosis came in the midst of the COVID pandemic, which added to our feelings of isolation and devastation. We have had to adjust to a new life and new hopes for our and Xavier’s future.
Please help me by giving whatever you can using the 'Give Now' button. The more people that know about the walk, the greater the impact, so please also spread the word by sharing our page with your friends and family. Thank you in advance for your generosity, it means a lot!
My Achievements
Ready set go!
You're on your way to becoming an Epilepsy Champ! Signup complete
Sharing is caring
Let the world know that you're helping those living with epilepsy on your socials
Back yourself
Self donate to show your friends and family how its done
First donation
Got your first donation! Well done!
Halfway Donation Milestone
You've hit the half way mark for donations! Keep up the good work
Smashed it!
You've hit your goal! We couldn't be more proud of you
First km complete!
Well done! Keep the momentum going!
Half way there
You've reached the halfway mark of your challenge, keep pushing forward!
You did it!
You've smashed your goal! We couldn't be more proud of you
$500!
Thankyou, you've raised $500!!! A Walk for Epilepsy pack is coming your way!
$1000!
Thankyou, you've raised $1000! You're in the draw to WIN an Apple iWatch
$2000!
Thankyou, you've raised $2000! You're in the draw to win a $1000 Rebel Sports VoucherMy Updates
Day 29
Sunday 29th OctDay 27
Sunday 29th OctDay 25
Wednesday 25th Oct With the awful weather continuing I was only able to get 2km in today with a quick walk to the supermarket with Xavier.Day 24
Tuesday 24th Oct Due to the high winds today, I wasn’t able to get Xavier out for a ride after work. I did manage 8km after the kids went to bed. I really wanted to keep going, but I’m starting to get a sore left achilles. ShareDay 23
Monday 23rd Oct 4km ride with Xavier in the trike after work and then a 7km walk tonight after the kids went to bed.Day 22
Sunday 22nd OctDay 21
Sunday 22nd OctDay 19
Thursday 19th OctDay 18
Wednesday 18th Oct Went for a swim at the local pool tonight. I’m trying to do a half hour swim at least once a week going forward. ShareDay 16
Monday 16th OctDay 15
Sunday 15th OctDay 14
Saturday 14th OctDay 9
Monday 9th OctDay 8
Sunday 8th OctDay 7
Sunday 8th OctDay 7
Sunday 8th OctDay 7
Saturday 7th OctDay 5
Thursday 5th Oct It’s been raining a fair bit here the past few days, so i went to the pool and swam some laps. ShareDay 4
Wednesday 4th OctDay 3
Tuesday 3rd OctDay 2
Monday 2nd Oct Xavier and I went for a 4km ride around our estate. We purchased a trike earlier this year and he loves riding in it. ShareDay 1
Sunday 1st Oct Kicked off this years Walk for Epilepsy today with a 12km ride with my eldest around a nature reserve near our house. Then took Xavier out in the trike for another 3km. In the afternoon we all walked along Point Lonsdale beach to the park and back for about 3km. ShareThank you to my Sponsors
$500
Anonymous
$420
Torquay Larder
❤️
$211
Bowie Excavations
$211
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$211
Anthony Doyle
$211
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$211
Karen And Ray Hislop
Fantastic effort…sending much love to your family xx
$140
Grant W
Amazing work, Jas!
$140
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$105.50
Anth Chelle Jensen
Good work Jase xo
$105.50
Tournier Fam
Go Jase and team Carlin!
$105.50
Willis Setouts & Surveys
Great stuff Jason 👏
$105.50
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$105.50
Anna Grigg & Paddy Herrick
Go Jase!!!
$105.50
Evan
Your a legend mate. Well done.
$105.50
Jessica Marsland
You guys are amazing. Such a beautiful family
$105.50
Lachlan Carlyle
Good luck with it mate
$105.50
Redgum Country
Great work Jason and family ..
$105.50
Eilis Lenaghan
Go Jase!!
$105.50
Brad Kelly
$105.50
Fraser Caddy
Hey Xav. Looking forward to hanging out with you next Friday
$105.50
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$105.50
Simon Taylor
All the best Jas.
$105.50
Oliverbirch
XXX
$105.50
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$105.50
Mike Kelly
Great job Jase 👏
$105.50
Debbie & Mike Kelly
Keep up your inspiring efforts to raise awareness Jase! Nanny & Poppy 🩷
$105.50
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$105.50
Steve Rockliff
Good job Jase 👏
$100
Fozz And Jayne
Let us know when we can join you!
$100
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$100
Tyson Priddle
You guys rock.
$100
Paul Moorfoot
$100
Leonie Mahar
$55.55
John Todt
Great stuff, mate.
$52.75
Cindy & Gary Dawson
$52.75
Ben Harding
$52.75
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$52.75
Hubba
Amazing work mate!
$52.75
Trictia
Well done Jason on finding the time to fundraise and create awareness.
$52.75
Jason Carlin
Kicking off my 2023 Walk for Epilepsy with a self donation.
$52.75
Jensen Family
$52.75
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$52.75
Ante Skoko
$52.75
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$52.75
Janet Novak
$52.75
Stacey Hanson Richard Knox
Doing great Jase!
$52.75
Marcus Mcwilliam
$52.75
The Barritts
Nice work Jase. Love you brother.
$52.75
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$52.75
Michael Carrato
I thought you looked healthier!
$52.75
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$52.75
Diane Daw
$52.75
Nexus Excavations
Good work mate 👍👍
$52.75
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$52.75
Teresa Wiggers
$52.75
Andrew & Angela
$52.75
Sharon Allison
Super proud of you all. We know the grief and isolation you can feel as a parent of Special Needs. You are true warriors for Xavier. All our love Xx
$52.75
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$52.75
Peter Munro
$52.75
Phyllis Kelly
We’ll done Jase and Xavy Great Nan Philly 🩷
$52.75
Kura And Damian
Go Jason and Elijah👏👏
$52.75
Michael And Julie In Devonport
$52.75
Kerry Carlin
Well done Jason. Very proud of your achievement for Xavier ❤️
$52.75
Carmel & Frank Rice
Great work
$50
Anita Mullick
$50
Bron And Pete Conlon
$50
Cameron Finn
$42.20
Amanda And Shane Barry
You are a legend Jase, so proud of you! Do it for xav!
$31.65
Amy Wilkinson
Love the updates Jason. Such a great cause.
$26.38
Doyle Family
$26.38
Katie
Top work Jase 👏👏
$26.38
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$26.38
Katherine Whitehead
$26.38
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$26.38
Annie Goodwin
Good luck with your fundraising! Xavier is a lucky little boy to have such a beautiful family xx
$26.38
Marg Guthrie
Great effort Jason. Love what you do x
$25
Anonymous
$25
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$25
Libby Moorfoot
$20
David Case
Fantastic work Jase
$20
Anonymous
$20
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$20
Ray Purcell
Well done you. I admire those that “do”
$11.11
John Todt
a little extra to help keep the ball rolling. great work, mate.
$11.11
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$10.55
Kingo
$10.55
Nexon Asia Pacific
Your donation was proudly matched by Nexon Asia Pacific.
$10.55
Christine Hanan
Well done Jason.