Daisy fights Dravet 🌼

We've created this team because..

We want to raise awareness and money to help make a difference for people living with epilepsy. 


We have been personally affected by this dynamic condition as our beautiful 5 month old daughter Daisy has just been diagnosed with a rare form of epilepsy known as Dravet Syndrome. 1 in 15,700 people will be diagnosed. This type of epilepsy begins in infancy and has challenging life long effects as seizures are prolonged and resistant to medication, which can have devastating outcomes. There is currently no cure however, we hope in Daisy’s life time there will be.


We have a long and challenging road ahead and would love your support. 

Please help us by giving whatever you can using the 'Donate' button. The more people that know about the walk/run, the greater the impact, so please also spread the word by sharing our page with your friends and family. Thank you in advance for your generosity, it means a lot to our family. 


Love the Goodley’s xx 



Our Achievements

Power of Many

Talk the Talkers

Making Waves

Movement Makers

Impact Collective

Mission Accomplished

Halfway Hustlers

Finish Line Force

Squad Goals

Team in the Spotlight

Loud and United

Call to Action Crew

Thank you to our Sponsors

$264

Rhys Goodley

$30

Claire Mika