My story
Thursday 16th Oct
My Walk for Epilepsy 💜
Epilepsy was never something I thought would be part of my story. It wasn’t something I really understood or even thought much about — until just after my 30th birthday, when everything changed.
Out of nowhere, I had my first seizure. Then another. And another.
Those moments were frightening and confusing — not just for me, but for everyone around me. Suddenly, life looked different. What used to be simple became something I had to think twice about.
Now, I take medication twice a day to help manage my seizures — something I’ll need to do for the rest of my life. It’s become part of my daily routine, and part of my family’s too. The stress of making sure I never run out of medication, always planning ahead for chemist trips, and keeping track of my doses is something we live with every day.
Epilepsy doesn’t just affect the person diagnosed — it affects the whole family. There are moments of worry, moments of frustration, and moments of fear. But there’s also strength, resilience, and love.
Before epilepsy, we didn’t know much about it. We didn’t know how unpredictable it could be, or how much it would shape our day-to-day life. We’ve tried our hardest not to let it stop us from living our active, busy life — but it’s not always easy. Some days are harder than others.
That’s why I’m walking.
I’m walking to raise awareness, to start conversations, and to remind others that epilepsy doesn’t define who we are — it’s just a part of our journey.
If sharing my story helps even one person feel less alone, or helps someone better understand what epilepsy really looks like, then every step will be worth it. 💜
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