Sophie Bailey

I want to raise money and awareness for people living with Epilepsy

On the 1st May 2023, my beautiful Ollie had his first seizure. For the next 6 months Ollie’s seizures were uncontrolled. He endured upwards of 50 seizures a day for many of these months.  Fortunately now he only experiences some myoclonic jerks and some absence seizures he continues to live with the effects of Epilesy and it was recently confirmed that he has an Epilepsy Encephalopathy a rare a complex condition that causes significant developmental delays. 

While he now experiences fewer seizures he continues to live with the daily challenges of this condition, challenges that affect his learning, his growth and his ability to experience life like other children.

I’d love to raise money because do much more needs to be done. Better treatments, more understanding and greater support. Raising funds will allow researchers to develop better therapies and ensures that no child, person or family has to go through what we have. Your support means the world to us.

Please help me by giving whatever you can using the 'Donate' button. The more people that know about the walk, the greater the impact, so please also spread the word by sharing our page with your friends and family. Thank you in advance for your generosity, it means a lot!