My Activity Tracking
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kms
My target 100 kms
I’m taking part in Walk for Epilepsy because... My daughter Harlow has been living with seizures since she was just four months old. Epilepsy has been a huge part of our lives, and the support we’ve received from ALC has helped us through some of the mos
This walk is really important to me because I want to help raise awareness and support other families who are living with epilepsy. No family should have to feel alone while navigating the uncertainty and challenges that epilepsy/seizure disorders can bring.
If you’re able to donate, any amount would mean so much to us and would help make a difference for people living with epilepsy and their families.
Thank you so much for supporting our team, and for helping us spread the word. 💜
My Achievements
Added a Profile Pic
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Made a Self-Donation
Raised $250
Raised $500
Raised $1,000
Raised $1,500
Raised $2,000
Raised $2,500
50% Fundraising Target Reached
100% Fundraising Target Reached
50% Distance Taregt Reached
100% Distance Target Reached
Created a Team
1 in 25 Challenge Champ
Legends Challenge Champ
My Updates
Harlow Poppy
Thursday 24th SepThis walk is really important to me because I want to share more about Harlow’s journey living with SCN8A, a rare genetic condition that has caused her to experience a lot of seizures since she was just four months old. Seizures have been a huge part of our lives, bringing uncertainty, worry and many difficult moments as we’ve worked to understand Harlow’s condition and find the right support for her.
Living with SCN8A has affected so much of Harlow’s childhood, but she continues to show incredible strength. We want to raise awareness of SCN8A and epilepsy, because many people have never heard of them or understand how much they can affect a child and their family. We also want other families to know that they are not alone.
If you’re able to donate, any amount would mean so much to us. Your support could help fund awareness, research and support for people living with epilepsy and rare genetic conditions like SCN8A.
Thank you so much for supporting Harlow and our team, and for helping us share her story. 💜





For our girl Harlow 💚