Sophie Carlyle

My Activity Tracking

0
kms

My target 100 kms

I’m taking part in Walk for Epilepsy because... My daughter Harlow has been living with seizures since she was just four months old. Epilepsy has been a huge part of our lives, and the support we’ve received from ALC has helped us through some of the mos

This walk is really important to me because I want to help raise awareness and support other families who are living with epilepsy. No family should have to feel alone while navigating the uncertainty and challenges that epilepsy/seizure disorders can bring.

If you’re able to donate, any amount would mean so much to us and would help make a difference for people living with epilepsy and their families.

Thank you so much for supporting our team, and for helping us spread the word. 💜


My Achievements

Added a Profile Pic

Shared My Page

Sent an Email

Made a Self-Donation

Raised $250

Raised $500

Raised $1,000

Raised $1,500

Raised $2,000

Raised $2,500

50% Fundraising Target Reached

100% Fundraising Target Reached

50% Distance Taregt Reached

100% Distance Target Reached

Created a Team

1 in 25 Challenge Champ

Legends Challenge Champ

My Updates

Harlow Poppy

Thursday 24th Sep

This walk is really important to me because I want to share more about Harlow’s journey living with SCN8A, a rare genetic condition that has caused her to experience a lot of seizures since she was just four months old. Seizures have been a huge part of our lives, bringing uncertainty, worry and many difficult moments as we’ve worked to understand Harlow’s condition and find the right support for her.

Living with SCN8A has affected so much of Harlow’s childhood, but she continues to show incredible strength. We want to raise awareness of SCN8A and epilepsy, because many people have never heard of them or understand how much they can affect a child and their family. We also want other families to know that they are not alone.

If you’re able to donate, any amount would mean so much to us. Your support could help fund awareness, research and support for people living with epilepsy and rare genetic conditions like SCN8A.

Thank you so much for supporting Harlow and our team, and for helping us share her story. 💜


Thank you to my Sponsors

$50

Isabel Nancarrow

For our girl Harlow 💚