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Mary-Anne Green

My Activity Tracking

219
kms

My target 100 kms

I’m taking part in Walk for Epilepsy around Australia because...

I want to raise money and make a difference for people living with epilepsy. Please help me by giving whatever you can using the 'Donate' button. The more people that know about the walk, the greater the impact, so please also spread the word by sharing our page with your friends and family. Thank you in advance for your generosity, it means a lot!

Please Help Me
Reach My Goal

Raised

$241

My Goal

$500

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My Achievements

Ready set go!

You're on your way to becoming an Epilepsy Champ! Signup complete

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Let the world know that you're helping those living with epilepsy on your socials

Back yourself

Self donate to show your friends and family how its done

First donation

Got your first donation! Well done!

Halfway Donation Milestone

You've hit the half way mark for donations! Keep up the good work

Smashed it!

You've hit your goal! We couldn't be more proud of you

First km complete!

Well done! Keep the momentum going!

Half way there

You've reached the halfway mark of your challenge, keep pushing forward!

You did it!

You've smashed your goal! We couldn't be more proud of you

$500!

Thankyou, you've raised $500!!! A Walk for Epilepsy pack is coming your way!

$1000!

Thankyou, you've raised $1000! You're in the draw to WIN an Apple iWatch

$2000!

Thankyou, you've raised $2000! You're in the draw to win a $1000 Rebel Sports Voucher

My Updates

And so the walk ends

Wednesday 25th Oct
Today may be the last day of walk for Epilepsy but it is not the end of people like Mason's struggle. Thank you to everyone who took the time to follow Mason's story, my reason for walking and thank you to all our sponsors ( there's still time). Until the next walk. 😀

Catching up

Monday 23rd Oct
As we near the end of walk for Epilepsy there's one more thing to bring light to. Developmental delays, from a tired brain from all that seizure activity over the years, from medications and from malnourishment from restricted diets. This little man is catching up, but needs all the help he can get. Funding for research towards treatments and better understanding of this disease is important but Funding towards helping these people learn and grow to their full potential is just as important. Every donation counts no matter how small.

This boy never ceases to amaze me...

Friday 13th Oct
After 4 days of wearing those uncomfortable wires and Dots 24 hours a day. We got to take it all off. There was pulling and pain but Mason only uttered a few ouches and shed a tear or two but after all that he smiles. He's just happy to be comfortable again. Happy to be headed to Monster Jam this weekend... Well deserved outing for my little warrior ❤️

What a mess...

Friday 13th Oct

Here's to hoping

Wednesday 11th Oct
Last time we did an at home video EEG there was tons of activity. This week we are redoing it in the hope that the seizure freedom we have been seeing on the outside is what we see on the inside too. Mason has to be home from school, which he loves to have this done. He is already behind his peers and every day away from his learning holds him back just a little bit. But this is all worth it in the end so we can continue to tailor his medications to what is going on inside him...

What better way to get some kms in than a walk around Floriade...

Saturday 7th Oct

Afternoon stroll getting those kms in.

Monday 2nd Oct

Slow but Fun

Sunday 1st Oct
Our first day on the walk and we did it in an unconventional way. The kids wanted to do an obstacle course. We got a few kms in. Doing things like this has been difficult for Mason for a long time. But today he showed how far he has come, he completed the whole course by himself more than once. What a champion our little warrior is..

Mason's story is always a good start for my walk for Epilepsy cause this is all for him...

Wednesday 20th Sep
This is always a difficult time of year for me. Not only is October the walk for Epilepsy month but it's the same month Mason had his firsts, his first febrile seizure at 11 months, his first Tonic-clonic at 23 months, his first admission to hospital and then this crazy journey began. 
Mason was having up to 5 TC's a day, oxygen therapy necessary due to cyanosis. And ontop of that he was having Atonic Myoclonic seizures (Drop seizures) too.
Diagnosis: Doose Syndrome otherwise known as Myoclonic Astatic Epilepsy. Rare, common to be intractable and most likely caused by a genetic mutation he has.
On Mason's second birthday he had his last TC but his journey was only starting, within a few weeks he was having hundreds of drop seizures a day. After many meds, bruises, cuts, helmets we decided to do the ketogenic diet in hope that it would work.
We started on MAD and worked our way up to a 4:1 ratio. It was working but then Mason refused to eat, became malnourished and went in for an emergency gastrostomy. It took him over a year to start eating well again and it was exactly 562 days when we removed his button. 
Mason is now weaned of the ketogenic diet and all but 1 medication and is just under 2 years seizure free. He attends mainstream school and is a happy healthy boy but not without issues, mainly developmental all due to this underrecognised and underresearched disease. This is why I walk, to help raise awareness and funding for not only our little warrior but all those and their families affected.

Thank you to my Sponsors

$105.50

Regina Bion

$52.75

Christine Greig

Well done Maryanne you never cease to amaze me with all you do! Big hugs to that super boy Mason much love Chris

$52.75

Bronwyn De Wolde

Here's to our little warrior!!! So proud of how far this little family has come.

$30

Matt

Nice work, great cause 👍