Login
Login

Do it for Dylan

Please Help Us
Reach Our Goal

Raised

$10,856

Our Goal

$10,000

Select amount to donate

$30
$60
$100
$150
$
Donate

All payments are secure & encrypted

💜 WE DID IT!!! 💜

💜 WE DID IT!!! 💜

Today marks the last day of our Walk for Epilepsy — and what a journey it’s been.

As many of you know, we set out to walk 100km each between 1–25 October, hoping to raise $2,000 for vital epilepsy research, treatment, and support for families like ours. What started as a small goal to turn our pain into purpose has become something extraordinary.

We’ve walked over 200km each, and together we’ve raised an incredible $10,330 — more than five times our original goal! 💜

Our inspiration for this walk is our son Dylan, who lives with Doose Syndrome — a rare, drug-resistant form of epilepsy. Dylan faces more than 100 seizures every single day. He’s tried countless medications, diets, therapies, and even a VNS implant — yet nothing works for long. He’s had nore hospital visits and ambulance rides than anyone should ever have in a lifetime. His condition is progressive and relentless, impacting his learning, memory, friendships, confidence, and daily life in ways that break our hearts.

There are no easy answers for Dylan — but there is hope, and that’s what we’ve been walking for.

We’ve had amazing and formidable team members walking with us across the world and Australia, in the UK, Dubai, Southern Highlands, Sydney, South Australia, Ayres Rock.  Dylan’s class mates, longterm family friends, his soccer team members, his teachers, past and present.  Incredible support. Unbreakable bonds. So much love. 💜💜💜 We feel blessed. 

Over the past few weeks, we’ve walked through the Southern Highlands, Osaka, Hiroshima, Nara, Kyoto, and Tokyo, racking up steps, stories, and a few new pairs of shoes! We’ve laughed, cried, got lost, found our way again, and discovered strength we didn’t know we had. Dylan has walked every step with us — his confidence growing with every stride, every message of support, every donation.

Your generosity has done more than raise funds — it’s lifted Dylan up. It’s given him pride, strength, and a sense that people see him and care. 💜

So from the bottom of our hearts — thank you. You’ve made this journey unforgettable.

👉 Today is the LAST DAY to donate.
Every dollar goes towards research to stop epilepsy in its tracks, and to support families like ours who live this reality every day.

Please help us make one final push — let’s finish strong! 💪

🔗 Donate here: https://www.walkforepilepsy.org.au/fundraisers/dylansharp/vic-nsw 

Let’s keep walking toward a future free from epilepsy.

💜 Do it for Dylan. Do it for thousands like him. 💜

#WalkForEpilepsy #TeamDylan #DoItForDylan #PurpleDayEveryday #EpilepsyAwareness #EpilepsyResearchre

First stop … Universal Studios Osaka!!

Super awesome fun way to rack up an instant 10km in a day!!  What an epic mind-blowing place! 

Osaka | Hiroshima | Nari | Kyoto | Tokyo

Thanks to our incredible supporters and our fantastic team, we’ve raised a whopping $6129 so far. But we’re not stopping here — with your help, we want to get to $7500!

💜 Do it for Dylan. Do it for thousands like him. Help make a difference by donating: 
👉 https://www.walkforepilepsy.org.au/fundraisers/saskiasharp/vic-nswc r

A huge thank you to everyone who’s donated already, you’re driving  research, and supporting families like ours living with epilepsy.  

Do it for Dylan!

We’re walking for our son Dylan, who lives with Doose Syndrome — a rare and drug-resistant epilepsy. Every day, Dylan faces over 150 seizures, despite years of trying multiple treatments, special diets, and even a Vagal Nerve Stimulator implant. There’s no known cause, no cure, and no break. Epilepsy is relentless, exhausting, and life-altering.


This cruel condition affects Dylan’s memory, learning, and daily life — and recently, it almost took his breath away during a severe seizure. That’s our reality. That’s why we’re walking.


So far, our amazing team has already raised $4,637 of our original $5,000 goal. But we don’t want to stop there — with your help, we’re aiming for $10,000 by October 25 to fund vital research, treatment, and support services for rare epilepsies like Dylan’s.


We’ll be walking in Japan — and wherever you are in the world, we’d love you to walk with us. Together, every step brings us closer to change.


👉 Donate if you can

👉 Join our team and set your own walking challenge

👉 Share our page and help spread Dylan’s story far and wide


Let’s show Dylan — and every family living with epilepsy — that they are not alone. 💜


Thank you for walking with us,

Dylan, Saskia, Nick & Ollie x

💜 Together We’ve Raised $3,337 (and counting!) 💜

WOW — we are absolutely blown away! Thanks to your incredible generosity, we’ve now raised a whopping $3,337 to support life-changing epilepsy research and vital services for families like ours.


This achievement means the world to us. Every donation, every share, and every person who’s joined our walking team (even from afar!) has helped push us closer to real change. From the bottom of our hearts — thank you. 🥹💜


But we’re not stopping here. Every step we walk in October is for Dylan and the 250,000 Australians living with epilepsy — and we’d love you to keep walking alongside us.


Here’s how you can continue to make a difference:

👉 Sponsor our team with a donation — every dollar counts!

👉 Share our fundraising link with friends, family, or your workplace.

👉 Join our team and walk your own way toward our collective goal. 🦶


Let’s keep the momentum going — together we can create hope, drive research, and make life brighter for those living with epilepsy. 💪💜


🔗 Sponsor & Donate: https://www.walkforepilepsy.org.au/s/8817/10304

🔗 Join Team Dylan: https://www.walkforepilepsy.org.au/join/DoitforDylan

We are blown away! 🌟

WOW! We’re absolutely blown away! 💜

In just over a week, we’ve raised $1663 for life-changing research and support into this crippling condition — and it’s all thanks to YOU.

To everyone who’s donated, shared, or joined our walking team (even from afar!) — our family is incredibly grateful. 🥹💜

Every step walked in October helps make a difference. You can:
👉 Sponsor our team
👉 Share the donation link
👉 Join us and walk your way toward our collective goal! 🦶

Let’s keep going, together. 💪

To sponsor and donate: https://www.walkforepilepsy.org.au/s/8817/10304

To join our Team and get walking yourself: https://www.walkforepilepsy.org.au/join/DoitforDylan

We've created this team because..

We love and care for someone who lives with Epilepsy.

We’re walking for our son Dylan, who lives with Doose Syndrome — a rare and drug-resistant epilepsy. Every day, Dylan faces over 150 seizures, despite years of trying multiple treatments, special diets, and even a Vagal Nerve Stimulator implant. There’s no known cause, no cure, and no break. Epilepsy is relentless, exhausting, and life-altering.

We want to raise money and make a difference by taking part in Walk for Epilepsy. Please help us by giving whatever you can using the 'Donate' button. The more people that know about the walk, the greater the impact, so please also spread the word by sharing our page with your friends and family. Thank you in advance for your generosity, it means a lot!

Our Achievements

Power of Many

Talk the Talkers

Making Waves

Movement Makers

Impact Collective

Mission Accomplished

Halfway Hustlers

Finish Line Force

Squad Goals

Team in the Spotlight

Loud and United

Call to Action Crew

Thank you to our Sponsors

$500

Eyecare Plus Moss Vale

Go Sharps! You are inspirational!

$500

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$365

Robyn Sharp

$264

Vaikobi

$264

Rohan & Lara & Grace & Callum & Lachlan Mcalpine

$213

Chris Stannage & Family

Good stuff Angela … you need a sail for this effort rather than walking!

$212

Grandma And Grandad

Massive achievement Dylan! Well done for raising so much. With you for every kilometre.

$212

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$211

Sandlants

We’re here behind you Dylan - Jo, Troy, Zach & Helena xx

$211

Gogo Anderson

Miaouw

$211

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$189

Dirty Janes

Well done to you all - will be thinking of you as you trek through Japan. From us all at Dirty Janes

$159

Emily

$159

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$158

Joseph Grange

Go Dylan!!!

$158

Nikki Van Althuis

Go team Dylan ! Love the van Althuis family x

$158

Michael Hogan

$158

Nick Knowles

Great cause, well done guys!

$107

Doreen And Lynn

With love and hugs from afar! xoxo

$107

Anonymous

$107

Yiman

Go Dylan!

$106

Robert Mcdonald

$106

Mike And Jet Macfarlane

Love and wishes to you all ❤️

$106

Chrissie Taylor

$106

Karen Hardie

❤️

$106

Sam Thomas

Go Team Dylan! Amazing family have fun walking!

$106

Emma, Mark, Genevieve And Elodie

Good luck team Sharp!

$106

Meg And Tom And Family

Your family are such a joy! We are walking beside you (…even if we are too disorganized to track ourselves!).

$106

Emad

Mate, Dylan is a champion and so are you and Sas. I wish the best for him and hopefully his health improves.

$106

Anonymous

$106

Lyndal

Wonderful thing you are doing Saskia!

$106

Ea Experience

All our love team!

$106

Chingmy & Richard

Go Sharps go!! ❤️😘

$106

Nibal Piro

Well Done, Hellen, you're amazing!!

$106

Olivia Wiseman

You're the best! Thank you so much for supporting this cause xxx

$106

Mikaela Bow

Well done, Saskia. Such an important cause. Dylan is lucky to have an advoate like you.

$106

Marilyn Anderson

$100

Adrienne Gabriel

Well done Chrissie. A cause very close to our heart .

$100

Nancy, Eddie & Nesta

Good luck Team Sharp!! Sending you all our love xxx

$100

Helen Ellis

Happy October! 100km - Good luck xx

$100

Clare Shackleton

Good luck x

$100

Latai Kinikini

Soooo proud of you all Dylan team! ❤️

$100

The Gilbert-alis Xx

Amazing work Team Dylan xxx

$80

Moss Vale Public School Slso’s

Go amazing team Dylan !!

$75

Suzie Payne

Go Dylan! Good luck with the rest of your walk all of you :-)

$65

Rowena Robinson

Sending blessings to Dillan and his family

$65

Neil Waldron

Good luck Sass and Nick!!

$65

Anonymous

Great job Els!!! Dylan is so lucky to have you as an amazing, supportive friend!!

$65

Susan Farrell

A great cause. I am proud of your effort. Best wishes. Love to Dylan

$65

Michael

$65

Angie

$65

Kerith Grundy

$65

Elsa Ross

Doing it for Dylan because he is awesome! X

$65

Anonymous

Good on you Ange and crew. All the best for Dylan too.

$65

Denice Effting

$65

Corinne Buxton

$65

Liz

$65

Jen Moore

$65

Sean Bradley

Great work Helen for a great cause go smash em x

$60

Esther Drayton

Well Done Nick!

$55

Katherine Hurst

$55

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$55

Emma Thomas

Great cause! Thanks for al you’re doing to raise awareness and find solutions.

$55

Elaine Yeo

Thank you for putting your effort into a wonderful cause. Happy walking!

$55

Tish Ainley

Go team! Xx great cause.

$55

Alex Swane

Keep going xx

$54

Marianne Jaques

Love your work Helski! Xx

$54

Saskia Sharp

$54

Anonymous

$54

James Dykes

$54

Penny

Having experienced just a small part of this with our son, I can only imagine what it feels like when that constant worry and vigilance is magnified. Take care xx

$54

Karyn Gojnich

Great cause - happy walking!

$54

Rochelle Hammond

Sending lots of support for those out there with this condition and their families who support them!

$54

Tracy King

$54

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$54

Zara Blinman

Got get em buddy!!

$54

Kathy Bolliger

Happy to support you in this venture

$54

Zara And Jai

Happy to help.

$54

Bec Finlaison

$54

Katiya Matos

💜

$54

Matt Wootten

$54

Michelle Bell

$54

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$54

Deb Nancarrow-eames

Great job Sharps!

$54

Sieng Bou

Go Sas! You and your family are amazing ♥️

$50

Annabelle Wright

Anything to show support for beautiful Dylan. Love the Wright's 💜💜💜

$50

Kattlen Quiza

Congratulations Dylan, Saskia, Nick and Ollie on all you have achieved. You're an inspiration!

$50

Latai Kinikini

$34

Mariana Green

Congratulations on such a wonderful achievement and best of luck on this courageous journey that Dylan is on! Let’s hope that one day there is a cure!

$34

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$34

Corinne Mawson

Go team. From the Sangster Mawsons

$33

Michelle Perkins

All the best on the big walk.

$33

Lucy Capel

With All my love ❤️‍🩹❤️‍🩹

$33

Penny Harley

$33

Avril Cook

Well done Dylan and team! I hope you enjoyed Japan xx

$33

Pamala Tancred

You go, girl!

$33

Tonia Krebs

Go Team!

$33

Chris Stephenson

$33

Amy Brown

$33

Sue Vorasane

$33

Helen Phillips

$33

Angela Farrell

$33

Caroline Howlett

Good luck Saskia, go do it for your brave boy xxxx

$33

Holly Henke

Go Aunty Emma! Love Noah

$33

Kathleen Austin-gifford

Good luck Saskia and Dylan!

$33

Emma Oakley

$33

Brooke Oryszczyn

Good luck x

$33

Dylan Sharp

$33

Madie Garlick

$33

Camilla G.

❤️

$33

Anonymous

Good luck to you all☘️

$33

Rozz

$33

Megan Kraljik

Well done Helen. Enjoy the walking.

$33

Wendy Frey

Well Done Emma 😍🎉

$33

Bron Deane

$33

Bernadette Tjahjadi

Great cause, well done Helen!

$33

Grayson Ryan

Good luck everyone!

$32

Anonymous

$32

Elaine Bennett

Well done Saskia and Nick. You are a bloody inspiration. Sending lots love to you and the boys. xxx

$30

Michelle Peters

You are all truly inspiring. Good luck and lots of love from us xx

$30

Christine Sturt

$30

Alison Andrew

$28

Alex Lunguly

Go team Sharp!

$28

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$28

Angela Soddu

You're amazing Ang X Sending Dylan love & wishing him rapid healing & recovery ♡

$23

Alison Layton

$23

Av Zealey

You are an amazing Mum, who has created an amazing family 💜

$23

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$23

Tara

I would love to join you on one or two of your walks :)

$12

Zoe Perkin

Our Team Members