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Saskia Sharp

My Activity Tracking

206
kms

My target 100 kms

I’m taking part in Walk for Epilepsy because...

We live with this debilitating condition day in day out. It’s relentless. It’s cruel. It’s exhausting. It’s crippling. It does not discriminate. 

We live with a drug resistant type of epilepsy which develops and increases in intensity and frequency each year. It’s not genetic, and it has no known cause.  It’s currently not treatable, despite years of multiple different medications, keto diet trials and a Vagal Nerve Stimulator (VNS) implant. 

We still experience over 150 myoclonic Absence seizures a day. Every day.  

Imagine that. Imagine how debilitating that would be to your daily life, your memory, your social interactions, your learning, your relationships, your thoughts, your feelings of self worth, your mental health.  It’s tiring just thinking about it. Now imagine living it. Every day, for the rest of your lives. 

On top of this, we live with a real fear. The fear that one day, our body will just give up. It will have reached its physical and mental load of exhaustion. 

This fear became a terrifying near-reality recently. Our young body stopped breathing during a particularly harrowing Tonic Clonic Seizure. A rare event, but now very much a possibility, a risk, our new reality.  The probability has now risen. Things are not improving. 

We want to raise money and make a difference for people living with epilepsy. 

Please help us raise funds for much needed research, treatment and support for families by giving whatever you can using the 'Donate' button, and if you can, join our Team. The more steps, the more funds raised.  Let’s show Dylan, and people like him that you care. 

The more people that know about the walk, the greater the impact, so please spread the word by sharing our page with your friends and family. 

Thank you for sharing our journey, it means a lot that you care. 

To join our Team and get walking yourself: https://www.walkforepilepsy.org.au/register/vic-nsw

Dylan, Saskia, Nick & Ollie. X 

Please Help Me
Reach My Goal

Raised

$4,690

My Goal

$5,000

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My Achievements

Face of the Walk

Loud and Proud

Spread the Word

Lead from the Front

Conversation Starter

Voice Amplified

Trailblazer

Difference Maker

Game Changer

Goal Crusher

Halfway Hero

Distance Champ

Team Spirit

1 in 25 Challenge Champ

My Updates

💜 WE DID IT!!! 💜

Saturday 25th Oct
Today marks the last day of our Walk for Epilepsy — and what a journey it’s been.

As many of you know, we set out to walk 100km each between 1–25 October, hoping to raise $2,000 for vital epilepsy research, treatment, and support for families like ours. What started as a small goal to turn our pain into purpose has become something extraordinary.

We’ve walked over 200km each, and together we’ve raised an incredible $10,330 — more than five times our original goal! 💜

Our inspiration for this walk is our son Dylan, who lives with Doose Syndrome — a rare, drug-resistant form of epilepsy. Dylan faces more than 100 seizures every single day. He’s tried countless medications, diets, therapies, and even a VNS implant — yet nothing works for long. He’s had nore hospital visits and ambulance rides than anyone should ever have in a lifetime. His condition is progressive and relentless, impacting his learning, memory, friendships, confidence, and daily life in ways that break our hearts.

There are no easy answers for Dylan — but there is hope, and that’s what we’ve been walking for.

We’ve had amazing and formidable team members walking with us across the world and Australia, in the UK, Dubai, Southern Highlands, Sydney, South Australia, Ayres Rock.  Dylan’s class mates, longterm family friends, his soccer team members, his teachers, past and present.  Incredible support. Unbreakable bonds. So much love. 💜💜💜 We feel blessed. 

Over the past few weeks, we’ve walked through the Southern Highlands, Osaka, Hiroshima, Nara, Kyoto, and Tokyo, racking up steps, stories, and a few new pairs of shoes! We’ve laughed, cried, got lost, found our way again, and discovered strength we didn’t know we had. Dylan has walked every step with us — his confidence growing with every stride, every message of support, every donation.

Your generosity has done more than raise funds — it’s lifted Dylan up. It’s given him pride, strength, and a sense that people see him and care. 💜

So from the bottom of our hearts — thank you. You’ve made this journey unforgettable.

👉 Today is the LAST DAY to donate.
Every dollar goes towards research to stop epilepsy in its tracks, and to support families like ours who live this reality every day.

Please help us make one final push — let’s finish strong! 💪

🔗 Donate here: https://www.walkforepilepsy.org.au/fundraisers/dylansharp/vic-nsw 

Let’s keep walking toward a future free from epilepsy.

💜 Do it for Dylan. Do it for thousands like him. 💜

#WalkForEpilepsy #TeamDylan #DoItForDylan #PurpleDayEveryday #EpilepsyAwareness #EpilepsyResearchre

Day 3 Hiroshima

Saturday 11th Oct
A much more somber and peaceful day yesterday with our first bullet train 🚅  to Hiroshima. 

A visit to the castle first to learn about the history of the town before the bomb. A stop in at a cat cafe homing beautiful mature pussy cats to prepare ourselves, before heading to the Peace Memorial Park, the Atomic Bomb dome and the Hiroshima Peace Memorial Museum. 

No amount of fluffy cats would have been enough to prepare us for the devastation where we learnt about the decades of after effects experienced after the bomb. 

Our takeaways:

Those in the epicentre were the ‘lucky’ souls. We, collectively as humans haven’t learnt from past atrocities and don’t do enough to remember or teach. 

This museum is up there in the most impactful we’ve been to, along with Choeung Ek. ‘Killing fields’, Phnom Penh, Cambodia, and the War Remnants Museum, Ho Chi Minh City, Vietnam. 

11,599 Steps / 11.9km. A lifetime of learning. 

Osaka | Hiroshima | Nari | Kyoto | Tokyo

💜 Do it for Dylan. Do it for thousands like him. Help make a difference by donating: 

Day 2 Osaka

Saturday 11th Oct
Oh my goodness me … our feet are killing us!! … We thought yesterday was a big day, until we managed to tick off a whopping 17km today on a manhole cover and stamp hunt through the streets and stations of Osaka. Throw in Osaka Castle and Team Labs Botanical Gardens for luck. We’re going to sleep well tonight! 

Osaka | Hiroshima | Nari | Kyoto | Tokyo

Thanks to our incredible supporters and our fantastic team, we’ve raised a massive $6196. Help us get to $7500!

A big thank you to our latest sponsors! 

💜 Do it for Dylan. Do it for thousands like him. Help make a difference by donating: 
👉 https://www.walkforepilepsy.org.au/fundraisers/saskiasharp/vic-nswc

Thank you to my Sponsors

$500

Eyecare Plus Moss Vale

Go Sharps! You are inspirational!

$500

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$263.75

Rohan & Lara & Grace & Callum & Lachlan Mcalpine

$159.07

Emily

$159.07

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$158.25

Michael Hogan

$107.04

Doreen And Lynn

With love and hugs from afar! xoxo

$106.85

Anonymous

$106.12

Mike And Jet Macfarlane

Love and wishes to you all ❤️

$106.12

Karen Hardie

❤️

$106.12

Emma, Mark, Genevieve And Elodie

Good luck team Sharp!

$106.12

Meg And Tom And Family

Your family are such a joy! We are walking beside you (…even if we are too disorganized to track ourselves!).

$106.12

Lyndal

Wonderful thing you are doing Saskia!

$106.12

Ea Experience

All our love team!

$106.12

Chingmy & Richard

Go Sharps go!! ❤️😘

$106.12

Mikaela Bow

Well done, Saskia. Such an important cause. Dylan is lucky to have an advoate like you.

$106.12

Marilyn Anderson

$100

Nancy, Eddie & Nesta

Good luck Team Sharp!! Sending you all our love xxx

$100

Helen Ellis

Happy October! 100km - Good luck xx

$100

Clare Shackleton

Good luck x

$75

Suzie Payne

Go Dylan! Good luck with the rest of your walk all of you :-)

$65.23

Neil Waldron

Good luck Sass and Nick!!

$64.67

Kerith Grundy

$54.95

Katherine Hurst

$54.95

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$54.53

Elaine Yeo

Thank you for putting your effort into a wonderful cause. Happy walking!

$54.53

Alex Swane

Keep going xx

$54.12

Saskia Sharp

$54.12

Penny

Having experienced just a small part of this with our son, I can only imagine what it feels like when that constant worry and vigilance is magnified. Take care xx

$54.12

Tracy King

$54.12

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$54.12

Zara And Jai

Happy to help.

$54.12

Bec Finlaison

$54.12

Michelle Bell

$54.12

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$54.12

Deb Nancarrow-eames

Great job Sharps!

$50

Annabelle Wright

Anything to show support for beautiful Dylan. Love the Wright's 💜💜💜

$33.78

Mariana Green

Congratulations on such a wonderful achievement and best of luck on this courageous journey that Dylan is on! Let’s hope that one day there is a cure!

$33.78

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$33.43

Michelle Perkins

All the best on the big walk.

$33.43

Lucy Capel

With All my love ❤️‍🩹❤️‍🩹

$33.40

Tonia Krebs

Go Team!

$33.15

Sue Vorasane

$33.15

Caroline Howlett

Good luck Saskia, go do it for your brave boy xxxx

$33.15

Camilla G.

❤️

$33.15

Anonymous

Good luck to you all☘️

$33.15

Rozz

$32.43

Elaine Bennett

Well done Saskia and Nick. You are a bloody inspiration. Sending lots love to you and the boys. xxx

$30

Michelle Peters

You are all truly inspiring. Good luck and lots of love from us xx

$28.14

Alex Lunguly

Go team Sharp!

$28.14

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$22.58

Av Zealey

You are an amazing Mum, who has created an amazing family 💜

$22.58

Nexon & Ucb

Nexon Asia Pacific and UCB have matched this donation.

$22.58

Tara

I would love to join you on one or two of your walks :)

Our Team